Abstract

Need Assessment of the Patients and Caregivers Living with Atopic Dermatitis in India-A Qualitative Research Study

Background: Atopic Dermatitis (AD) is one of the most common types of eczema. In India, there is a scarcity of literature on the disease burden and challenges associated with the diagnosis and treatment of AD of patients and caregivers. Dakshama health (Dakshayani and Amaravati health and education) conducted a qualitative research study of patients suffering from AD to understand the unmet needs and challenges in India.

Methodology: A qualitative study was conducted on 24 AD patients. A structured questionnaire was used to collect the patients perspectives. In-depth interviews were carried out of the patients and caregivers living with AD. Patients’ challenges and unmet needs were transcribed and content analysis was carried out.

Results: Patients expressed a need for reliable information about AD. Due to lack of credible information, they develop misconceptions and experienced stigma and discrimination, leaving them depressed. Patients end up visiting multiple doctors before receiving a confirmed diagnosis of AD, which worsens their condition. Patients seek alternative treatments and discontinue medications, leading to complications. Embarrassment caused by visible symptoms has resulted in societal rejection, anxiety, depression and suicidal behavior.

Conclusion: AD is accompanied by a lifelong therapy that eventually drains one’s finances. High treatment cost makes it difficult for them to continue with the treatment, leaving them frustrated. Their perspectives must be acknowledged and brought to the policy table to develop standard treatment and management guidelines. AD recognition under national health policy can open the door for more affordable and accessible treatment for patients

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